Do you care for a person living with dementia?
Would you like to share your knowledge to help improve the lives of people living with dementia?
Monash University and Curtin University, in partnership with Alzheimer’s WA, are conducting a research project in Western Australia and Victoria to better understand carers’ opinions of how people living with dementia receive and use a walking aid (for example a walking stick or walking frame) to help with their walking and moving around at home and in the community.
If you are caring for someone living with dementia we would love to hear your opinions. The short survey will take approximately 15 minutes to complete and can be completed by clicking on the following link https://monash.az1.qualtrics.com/jfe/form/SV_5srYWV0nFvPLdJP
If you have any questions please contact the WA lead researcher
Dr Elissa Burton (Senior Research Fellow)
Curtin University on firstname.lastname@example.org or 9266 4926.
Today the Care, Tomorrow the Cure
Dementia research is a key element of Alzheimer’s WA’s mission and mandate. As such, we have a strong commitment to supporting dementia research and driving the dementia research agenda. Our focus is to advance the understanding of best practice dementia care, and we also contribute to and support other research institutions in exploring prevention, treatment and cure for dementia.
We engage in research to further our knowledge and develop evidence for best practice through partnerships with research institutions. These partnerships currently include collaborations with local, national and international researchers and universities.
We have a strong commitment to sharing the research evidence and knowledge with others to improve dementia practice across the health and care sectors.
Alzheimer’s WA provides information to its members and dementia advocates’ network on the latest research taking place and raises awareness of opportunities to participate in research studies being undertaken. Involving those living with dementia either directly or indirectly in the research programs is a key priority for us.
Supporting Our Research Program
Our research program is funded through donations. Our key focus is on supporting research projects that help support people living with dementia and the person caring for them. Where research donations are made with specific intent for medical research, or to help find a cure, Alzheimer’s WA will partner with medical research groups to use this funding for its identified purpose.
StepUp for Dementia Research
Alzheimer’s WA is pleased to be partnering with the University of Sydney in developing a new way for people to get involved in dementia research. The StepUp program will allow people living with dementia, carers, family and the general public to register their interest in volunteering for research projects in dementia treatment and care. Researchers undertaking studies will also be able to register their projects for people to see and volunteer in. This Australian first project aims to link researchers with study volunteers in order to increase the effectiveness and outcomes of dementia research. If you would like to view more information please visit the StepUp for Dementia Research website.
Our dementia expertise can be a valuable contribution to research projects. Our staff, clients and families may provide reference group membership or associate investigator/chief investigator roles to strengthen the collaboration in projects.
If you would like to discuss a research partnership with Alzheimer’s WA, please contact: Jason Burton – Head of Dementia Practice and Innovation.
Our research partnerships include:
Promoting Independence Through Quality Dementia Care at Home (PITCH Study)
Alzheimer’s WA is pleased to be a partner in a new research study looking at improving dementia specialist training for community support workers. The National Ageing Research Institute has won a major NHMRC grant to develop and test an evidence-based dementia specialist training program for community dementia care.
Known as PITCH, the project aims to directly benefit people with dementia and their carers by upskilling home-care workers to provide care that promotes independence, improves quality of life and reduces family carers’ burden.
Seventy per cent of Australians with dementia live in the community and of these, 84 per cent are estimated to have a severe or profound disability. The quality of home care they receive directly influences their life quality and ability to remain independent.
“Providing home care is challenging as support workers often work in isolation with little direct supervision, in varied environments, and in sometimes highly stressful situations, therefore needing higher levels of skills and situational adaptability,” Dr Briony Dow said.
For more information on this study please view the PITCH poster.
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